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Thank you for your unwavering support over the past half year. With your help, we’ve held impactful events, raised awareness, and advanced our mission to support those affected by dystonia. Let's continue to build on this momentum, fostering hope and making a difference together.
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Table of Contents
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Thank you for making Freedom to Move: Run, Walk, and Wheel for Dystonia a success. Your involvement has significantly impacted over 50,000 Canadians living with dystonia.
Together, we’ve raised over $47,000 of our $50,000 goal. You can take us over the final hurdle and get us across the finish line! Every contribution supports vital dystonia research and essential programs through initiatives like the DMRF Canada Clinical and Research Fellowship.
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Dystonia Coalition Projects: Dr. Susan Fox and her team at Toronto Western Hospital are conducting two Dystonia Coalition Projects on dystonia. The main study and the related Patient Centered Outcome (PCO) app project are designed to work together to advance the understanding and treatment of dystonia. Please click here
for more information.
Research Study on Brain Interactions: Dr. Talyta Grippe at Toronto Western Hospital is recruiting for a study that aims to understand how the interactions across different areas of the brain of a dystonia patient differ from those without dystonia. For more information, please click here.
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Dystonia Over Time: What We’re Learning from a Natural History Study Visit our Latest Research News section here to read more. |
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September marks Dystonia Awareness Month, and we welcome everyone to join our mission to promote public awareness of dystonia. Become an Awareness Ambassador: Help raise awareness by distributing dystonia educational materials. Request your package by contacting info@dystoniacanada.org by August 10th and start raising awareness in your community this September. National and Local Media: We are grateful to our awareness partner AbbVie Canada who will launch a national PR campaign on cervical dystonia. This initiative will share powerful stories of Canadians living with cervical dystonia and their care partners, alongside insights from dystonia specialists. Stay tuned! |
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Volunteer Opportunity at Bingo World and Gaming Richmond Hill Attention Greater Toronto Area Residents! DMRF Canada is excited to announce a fundraising opportunity through Bingo World and Gaming Richmond Hill. In exchange for volunteers’ time, DMRF Canada will receive a portion of the money raised from the Bingo events. Volunteering Details
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The Samuel Belzberg 6th International Dystonia Symposium, held in Dublin, Ireland last year, brought together top dystonia researchers from 32 countries, including 68 faculty members and nearly 350 attendees, all striving for a deeper understanding of dystonia and how to treat those affected.
A summary is now available
. It presents the latest dystonia science, covering an overview of current knowledge, new thinking and research findings, topics of debate, and questions for future exploration.
Thank you to the Dystonia Medical Research Foundation (USA) for allowing us to share this summary. |
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Physiotherapists Working with Dystonia Patients: Please click here to find an updated list of dystonia trained physiotherapists and clinics.
Webinar Recordings Now Available:
Webinar on Botulinum Neurotoxin Injections for Dystonia: Presented by movement disorder specialist Dr. H. A. “Buz” Jinnah, this webinar discusses the intricacies of botulinum neurotoxin injection therapy, answering questions about the chances of side effects and achieving optimal results.
Webinar for Dystonia Caregivers: This webinar focuses on dystonia caregivers and the steps they should consider in taking care of their needs. The speaker for this program is Natalie Hellmers, PhD, RN, ACNP-BC, Nurse Practitioner of Weill Cornell Medicine, Department of Neurology.
Thank you to the Dystonia Medical Research Foundation (USA) for allowing us to share these webinar recordings. |
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Our mission thrives on the power of our community. As we face an increasing need for support, we need your help to amplify our impact by introducing us to your network. Help us sustain and grow our impact through partnerships with organizations that can provide sponsorships, grants, and donations, or include us in their employee giving programs. Visit here to learn more.
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Connect with support groups around the country by location or by a specific type of dystonia. Please click here to find a support contact person.
Upcoming Support Group Meetings and Programs:
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Please visit our website at https://dystoniacanada.org Donate to our cause at https://dystoniacanada.org/donateonline
Our NEW mailing address is:
Dystonia Medical Research Foundation Canada PO Box 1009 Stn Toronto Dom Toronto ON M5K 1P2 Canada Would you like to forward this email to a friend? Click here
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