 |
|
|
 |
Thank you for your unwavering support over the last year! With your help, we’ve held impactful events, raised awareness, and advanced our mission to support those affected by dystonia. Let's continue to build on this momentum, fostering hope and making a difference together this year. For more details on how you can get involved and make a difference, please read on.
|
|
|
|
|
|
|
|
 |
|
Our thanks to Post Media journalist Karen Hawthorne for publishing two insightful articles on cervical dystonia on Healthing.ca, a Canadian platform providing verified healthcare information, trending health news, and inspiring real-life stories. We are grateful for the contributions of Ken and Dr. Martino.
|
|
|
|
 |
|
Participate in Research Studies Covid Time Capsule: CanChild researchers and McMaster University have partnered up to conduct this study. Their goal is to understand the process, struggles and needs of parents who raised children with disabilities or extra healthcare needs. With this information, they hope to learn what parents in the future would need to support children in those types of situations.
Parenting with Lifelong Care Needs: McMaster University and Royal Mount University came together to work on a study. The goal is to use the study to improve health and social care for those with lifelong care needs and their families. If you are a parent of a child or young adult with these types of conditions, you may like to consider signing up to help the medical field improve its care and support.
For more information, contact information or to sign up, please read more on our website here.
|
|
|
|
 |
|
Join us this June for Freedom to Move: Run, Walk, and Wheel for Dystonia! Participate virtually anytime from June 1–30, or in person on June 8 at Downsview Park, Toronto. Stay tuned—registration opens soon!
As our largest fundraiser and awareness event, Freedom to Move serves as a vital platform to rally support for dystonia. Help us grow our impact—spread the word, invite friends and colleagues, or connect us with potential sponsors. A partnership/sponsorship brochure is available on our website.
Learn more at www.dystoniacanada.org/freedomtomove or contact info@dystoniacanada.org.
|
|
|
|
 |
|
Reminder: the deadline to submit a letter of intent is April 30th 2025
The 2025 Jackson Mooney Dystonia Patient Grant provides financial assistance of up to $5,000 for dystonia patients who are interested in furthering their education to meet their career objectives.
Qualifications - To qualify for the grant, applicants must:
- Have been diagnosed with dystonia by a medical professional;
- Be a Canadian citizen or Permanent Resident of Canada;
- Be pursuing further education or skills for a career change due to dystonia, or be enrolled in post-secondary education
To learn more, apply or see past winners, please click here. |
|
|
|
 |
|
Do you want to support the dystonia community? Do you have a hobby or special interest you love doing? Need that push to try something new? Here’s an opportunity to let yourself shine while raising funds and awareness for dystonia.
The spirit of this campaign is to empower people to put their passions, skills, on display in order to raise awareness and funds for dystonia. To learn more, click here to see previous fundraisers and to participate. |
|
|
|
 |
|
Mark your calendars! Rare disease day is on February 28th! On this day, people spread awareness for rarer and lesser-known illnesses and diseases. Join us in making a difference for the dystonia community by showing your support. Keep an eye out for DMRF Canada’s social media post and re-share it with your own story using #rarediseaseday to show your support. To learn more about rare disease day, see some other amazing stories or get involved, please click here.
|
|
|
|
 |
|
Attention Vancouver Island residents, a new support group is available for you! Our Thompson/Okanagan BC Support Group Leader, Soreyea Apolzer recently relocated to Vancouver Island and has established a group on the Island. The Group will be hosting bi-weekly virtual meetings starting on February 15 from 7PM to 8PM Pacific Time. All are welcome to attend. If you would like to get in touch with Soreyea or find more information about support available on Vancouver Island, please click here.
|
|
|
|
|
|
|
|
| | |
|
|
|
Our NEW mailing address is:
Dystonia Medical Research Foundation Canada
PO Box 1009 Stn Toronto Dom Toronto ON M5K 1P2 Canada
Would you like to forward this email to a friend? Click here
|
|
