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Read some of the latest on Dystonia Research:
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The 2024 Jackson Mooney Dystonia Patient Grant provides financial assistance of up to $5,000 for dystonia patients who are interested in furthering their education to meet their career objectives.
Qualifications - To qualify for the grant, applicants must: - Have been diagnosed with dystonia by a medical professional;
- Be a Canadian citizen or Permanent Resident of Canada;
- Be pursuing further education or skills for a career change due to dystonia, or be enrolled in post-secondary education
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Through Do It for Dystonia you can help raise funds for critical dystonia research and support programs when you want and the way you want. From birthday fundraisers to hosting spin classes, “Do It” provides the opportunity to for you to tap into your creativity and help make a difference in the lives of the 50,000 Canadians living with dystonia.
In a “Do it” first, one of our members will be donating the proceeds from her YouTube Channel towards dystonia! Click here to start your campaign today and “Do it” for dystonia!
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Save The Date – June 2024
This June, Freedom to Move: Run, Walk, and Wheel for Dystonia is back with both in-person and virtual options!
We invite you to join us in a celebration of strength, community, and determination to make a positive impact for those living with dystonia. You can complete a walk, run, or wheel either virtually in your own community or at in-person site on June 2 at Downsview Park, Toronto ON.
New this year - an exciting collaboration to maximize our impact! Mark your calendars and stay tuned for more updates.
Get Involved – Your Support is Crucial. Reach out to friends, family, and colleagues to form a team, help us spread the word, and/or contribute to prizing and sponsorship. Visit our website to download a copy of our sponsorship package and see how you can support our community.
For inquiries, please contact us at info@dystoniacanada.org.
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If you or a loved one is affected by dystonia, this webinar offers valuable insights from recent research, focusing on quality of life that can impact both individuals with the condition and their caregivers. It will be followed by a support meeting.
Dystonia and Quality of Life – Recent Research and Insights Date: March 16, 2024
Time: 11 am MT/1 PM ET - Please Check your Corresponding Time Zone
Specialist Speaker: Dr. Davide Martino, Ph.D. MD, Director of the Movement Disorders Program at the University of Calgary
Note: This webinar will not be recorded.
Haven't received an invitation for this webinar? Please subscribe to our mailing list to stay informed about upcoming events and resources. Kindly indicate that you are either an individual with dystonia or a loved one. Click here to sign up.
Special Thanks to Our Sponsor:
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This weekly Neurologic Music Therapy group is here to support those with dystonia.
Led by PhD and MA students from the University of Toronto Faculty of Music, this session guides you through standardized musical exercises designed to help reduce chronic pain and tension.
When: Thursday evenings, 5:30 PM - 6:30 PM Eastern Time
Where: Zoom
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Make a difference in advancing research and treatment. Your responses will help better understand the dystonia experience and help guide future directions in research. Click here to sign up for Global Dystonia Registry today. |
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This survey aims to investigate the use of non-traditional therapies (herbal medicines, acupuncture, CBD oil) in people with focal dystonias. It should take less than 10 minutes to complete and asks about the types of therapies that people are using and their effectiveness. These results will help healthcare providers better understand the use of these treatments.
This study is being conducted by the Dystonia Research Group, Dublin. Principal Investigators of this study are Professor Michael Hutchinson, Dr. Conor Fearon and Dr. Shameer Rafee, based in Dublin, Ireland. For more information visit the research website: https://www.dystoniaresearch.ie/ |
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Rare Disease Day 2024 is coming up on February 29. Let's unite in raising awareness for dystonia, a movement disorder impacting an estimated 50,000 Canadians.
Join us in making a difference for the dystonia community by showing your support. Keep an eye out for DMRF Canada’s social media post and re-share with #rarediseaseday to show your support. Find us on Social Media. |
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Connect with support groups around the country. Click here to find a support group in your area.
Upcoming Support Group Meetings:
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Our NEW mailing address is:
Dystonia Medical Research Foundation Canada
PO Box 1009 Stn Toronto Dom
Toronto ON M5K 1P2
Canada
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